Juvenile Krabbe Disease victims' mum in plea to help save her twin boys HomeNewsUK NewsAnthony Nolan TrustLuis and Kian King: Luis and Kian, seven, desperately need a double bone marrow transplant as the disease, which quickly ravages the nervous system, is making them worse by the week22:31, 18 FEB 2015Updated22:40, 18 FEB 2015Desperate plea: Luis and Kian louis vuitton belt replica paypal King need your help Get daily updates directly to your inbox+ SubscribeThank you for subscribing!Could not subscribe, try again laterInvalid EmailA devoted mum whose sick twins desperately need a double bone marrow transplant has begged the louis vuitton site officiel bracelet nation: "Please save my boys."Luis and Kian King, seven, have Juvenile Krabbe Disease, which quickly ravages the nervous system and the youngsters are getting worse by the week.Parents Laura, 36, and Dean, 38, know the odds are stacked against the boys, as doctors battle to find donors for the UK's first twin transplant, before they become too weak to survive treatment.The average life expectancy top 3 louis vuitton bags of a child with the rare disease is just 12.Laura pleaded: "If you are not on the donor register you could be the match who can give my boys back their lives and their futures and louis vuitton neverfull azur gm you don't even realise it.(Photo: Warren Manger / Daily Mirror)"All of us are giant medicine bottles walking around with the ability to help others in their hour of need. It only takes 10 minutes to join the register and you can change a family's life forever."Juvenile Krabbe Disease which affects fewer than one in a million children has left the boys, who also have cerebral palsy, unable to walk unaided.Experts have warned that without a stem cell transplant they only have three years left with any real quality of life.The disease will rob them of their sight and ability to feed themselves, causing them to suffer more and more pain until they can no longer breathe unaided.With the boys just five years off the average life expectancy of 12, Laura admits their illness haunts her.She said: "I think about it every minute I'm awake and dream about it when I sleep. We talk about nothing else. We know we have to keep fighting."(Photo: Warren Manger / Daily Mirror)She went on: "But we don't have much time.
The sooner the boys have the transplant the better their quality of life will be."The only way to ensure doctors can harvest enough stem cells for both boys is to find two matching donors.Neither of the twins' sisters Ellie Mae, 11, and Shannon, 14, are a match, nor are any of the one million people on the Anthony Nolan donor register.
Prev: louis vuitton neverfull articles de voyage
Next: louis vuitton neverfull ebay